Tuesday, November 9, 2010

November 4

I write this with blurry vision so don't mind my typos and many other errors. This needs to be documented and really, who writes in journals these days? It just makes your hand hurt.
November 4th began on October 24th. The day after my brother and sister-in-law's wedding. I woke up and noticed that my right foot was a little numb. I didn't think much of it and I definitely did not tell Tyler. I hate attention when it comes to my health.
Two days later during school, I scratched the right side of my head was also numb. With further inspection, I felt(or didn't feel) that the numbness had taken over my entire right side. I asked my wonderful massage variations teacher, Kathy Thomas what it could mean. She thought for a while and couldn't think of a reasonable explanation for my symptoms but suggested that I go see a doctor.
At this point, I didn't think much of seeing a doc since I had no other real symptoms until i woke up the next morning.
I got out of bed to get ready for work and noticed that I was having difficulty catching my balance. Again, I didn't think anything of it. Weird things happen to me all the time so I wasn't too worried.
The dizziness hit me while I was a work. This type of dizziness is like when you turn your head to look at the something or someone and it take a few second for your brain to catch up to the image which make nausea a perfect companion. All I could do was keep my eyes closed and my head on my desk. No matter how hard I tried, my eyes could not just stayed focused on one thing. After two days of this, Tyler decided it was time to see my doctor.
The doc started all sorts of tests to rule out Bell's Palsy, stroke and who knows what else. After all those came back negative, he threw his hands up and admitted defeat(mostly for my sake because I believe he knew the whole time). He ordered me to go the hospital ASAP for a CT scan for further testing. Ty and I get there with my mom following just minutes behind.
One preg test and one CT scan later.Both test came back negative. I have gotten used to many a pregnancy test coming back negative but when someone else tells you, it's a new level of hurt.

Now onto blood work. Same story. Everything comes back dandy.

Thursday, November 4th.
I always wanted to know what it would be like to go into that big tube like machine.
It was actually quite relaxing. Fell asleep a few times even.
Waiting was the hardest part. Around 1 ish my mom texts me to tell me that the radiologist sees, "fog and dust" on my brain scan.
Me thinking it's a joke saying that I have no brain, I laugh it off.
A while later my mom encourages me to call my doctor to have him read the report to me.
I believe at this point she already knew.
I call him and leave a message. Waiting. Waiting. More waiting.
At 5:20 p.m. he calls me.
I have MS.
I can't stop the river of tears down my face. Tyler still doesn't know but he is crying just like me.
Once I get off the phone he just holds me and we cry and cry.
My mom showed up 2 minutes after I get the news.
She sees me and I ask her if she already knows and I can see her heart break.
She hugs me and we cry.

The only real interaction I've had with someone with MS, they were in their mid 20's and in a wheel chair.

Was that going to be me? What about work? What about school? How am I supposed to give body work to my clients when I can't even stand on my own?
What about all the babies I want to have?
Will they resent me for being a sick mom?
How am I supposed to take care of Tyler and his back pain?
Am I going to miss out on the holidays and time with my family?

In that moment, I felt myself age by 30 years.

I feel so betrayed by my body. I really though that being a vegetarian would excempt me from gettting sick. I have always been known as the girl who doesn't get sick. The girl who can fall asleep at the drop of a hat.
I had endless energy.

That is ALL gone. Within two weeks my life has changed forever.

The next day I am ordered to get a spinal tap to confirm or deny the MS diagnosis.
After two hours of waiting it's finally my turn. I was asked to lay flat on my stomach while they put the big needle between my lumbar vertebrae. A spinal tap is literally like tapping a tree. You just sit there and wait for the spinal fluid to drip into the vial. The nurse said that it usually takes between 15 minutes to over an hour.

I only took 2 minutes-tender mercy?

That night my immediate and extended family had the opportunity to stay the weekend at my sister's mission president's cabin. It was one of the best times I've had with my family. My dad gave me the most beautiful and comforting blessing. So many worries and questions were answered. Questions that I had only expressed in my heart.

Come Monday morning my doctor calls me about the spinal tap results.
I have been officially diagnosed with MS. It came as no surprise to me. I don't cry much about it anymore either because I am out of tears or because I feel sustained from everyone that loves me.

Heavenly Father loves me. He knows how I am feeling. He knows I'm scared. He loves me and will comfort me through every treatment, every test and every breakdown. This is the only thing that I KNOW to be true.


TODAY I am grateful that while I stood in the shower holding onto the ledge, Tyler washed my hair and shaved my armpits for me.
TODAY I am grateful that I don't throw up after every car ride.
TODAY I am grateful that my mom, Meagan and Chase came over and cleaned.
These things are love in it's most raw, selfless form.

17 comments:

.From Her. said...

Courtney! Wow.

Thank you for sharing your life with me. The good and the bad. You are hysterical, and always make me laugh.

I must admit, you got me with this one; tears rolling down my cheeks. I'm so very sorry. So very sorry.

I will keep you in my thoughts and prayers. Love ya kido.

Jennie said...

I held it together until the end. Nothing like Tyler shaving your armpits for you that made the tears come down my face.

Thanks for sharing. You have been in our prayers for sure.

The Springers said...

You are in our thoughts and prayers.

Chelsea Lynn said...

I love you, pray for you, think about you everyday. I miss you more and more just reading this. You are amazing, and strong. Glad you have Tyler and your amazing family! :)

Tawny said...

Oh honey, i just love you. My first counsler in YW has MS, and no one could ever guess. She is 30 something yrs. old and the most amazing turbo ever. She has one 2yr old daughter and they have just put in adoption papers. She is the only person i know with MS, and she is AMAZING. Keep your chin up, everybody's routing for you, you strong and will conquer!:) I love you.

Marsha Judkins said...

Courtney, Courtney, Courtney...what can I say. Thank you for seeing the good things in your life and for your testimony. You are an inspiration to me, with or without MS.

Unknown said...

Coco~
I know we aren't a mushy, mushy family and we usually joke to avoid any pain or sadness, but I want you to know, all jokes aside, that my heart hurts with yours. I love you and you are def in my prayers. I know that you can handle this. It will be hard, but you know that you have a family that loves you very much that will help you thru this. We seem to be having a run of "bad luck" in our family right now. We have much fun to be had in our future. We both will have kids and when we do, we will prob wonder why we even wanted them:), but we do! I'm here for you and love you. Be strong and trust in the Lord. (Easier said then done).Love.

The Kessler's said...

I'm coming to see you soon. Even harder than suffering yourself is watching somebody else suffer. I'm so sorry. I'm home all day, so as soon as I'm not sick anymore I'll be over, and we can think of some things to do if you want. I would love to help you with anything you need.

Hannah S said...

I've been thinking about you all week. I've only known 2 other people who had MS. Both were so capable and accomplished so much! More than I personally do. Thanks for being candid and you're in my prayers.

Erin said...

Oh man, Courtney. I'm so sorry. Keep us posted. Is there anything we can do to help?

cat+tadd=sam said...

Just breaks my heart! I talked with Meagan about this, and was so pleased to hear what a great attitude you've had, which I knew you'd be like! You are so strong, and definitely a fighter! Truly an inspiration to me. Please let me know what I can do to help! Need a blow dry? :)

Natalie said...

As I read your words, my heart began to hurt for you. I have been thinking about you since I read this a few days ago. You have an amazing way of expressing your thoughts and feelings through writing and I admire that about you! I KNOW you can get through this trial in your life, you are a strong and incredible woman. And you have a wonderful family who I know will be right by your side. You will be in my prayers.

Jodi said...

you are the strongest girl I know...love you

Jessica said...

Courtney-
I just sat here and bawled as I read this post. I can only imagine the trial you and Tyler are going through. I have some close family friends that have MS. I want you to know that you are in my prayers and thoughts. Thank you for your testimony and for this post.

raina said...

You are truly amazing.

Plus, my word verification word is "teabie". So that's cool.

ThE CaRr SuPeRsTaRs said...

Megan- Hey!!!
I came across your blog today and i'm so glad I did! After reading this post, and crying while reading it, I just want you to know what a strong inspiration you are to me. I am very familar with MS, I see my Fatehr in law suffer from it on a daily basis. Your attitude is AMAZING and your testimony and faith is also amazing! Hang in there girl! Remember Heavenly Father doesn't give a trials and challenges that he knows we couldn't handle! Love ya!! :)

ThE CaRr SuPeRsTaRs said...

I can't believe and I don't know why I put Megan..... Sorry Courtney....looks like it's my bed time LOL :)